For people dealing with the practical and emotional challenges associated with retinoblastoma, support can come from a variety of sources. For instance, support groups can help those coping with the cancer. People in retinoblastoma support groups get together to share what they have learned about coping with the disease and the effects of treatment. Other potential sources of support for people with retinoblastoma may include the healthcare team, social workers, and members of the clergy.
Dealing with retinoblastoma can be challenging for people with the cancer and their families. Some people find they need help coping with the emotional and practical aspects of the disease.
Retinoblastoma support groups can help. In these groups, patients and their family members get together to share what they have learned about coping with the disease and the effects of retinoblastoma treatment. Patients (or their families) may want to talk with a member of their healthcare team about finding a retinoblastoma support group. Retinoblastoma support groups may offer support in person, over the telephone, or on the Internet.
Concerns about retinoblastoma treatments and managing side effects, hospital stays, and medical bills are common. Doctors, nurses, and other members of the healthcare team can answer questions about retinoblastoma treatment or any concerns you might have.
Meeting with a social worker, counselor, or member of the clergy can be helpful to those who want to talk about their feelings or discuss their concerns. Often, a social worker can suggest resources for financial aid, transportation, home care, or emotional support.