Retinoblastoma Questions: An Introduction
Many people want to take an active part in making decisions about their child's medical care. They want to learn all they can about
retinoblastoma and the
retinoblastoma treatments that may be available. However, the shock and stress that may accompany a retinoblastoma diagnosis can make it hard to think of everything to ask the doctor.
Often, it helps to make a list of questions before an appointment. To help remember what the doctor says, people may take notes or ask whether they may use a tape recorder. Some also want to have a family member or friend with them when they talk to the doctor -- to take part in the discussion, to take notes, or just to listen.
Retinoblastoma Questions to Ask Before Treatment
Some questions you may want to ask the doctor before treatment for retinoblastoma begins include:
- What kind of cancer does my child have?
- Has the cancer spread? What is the retinoblastoma stage?
- Does my child need any more tests to check for the spread of the disease?
- What are the retinoblastoma treatment choices? Which do you recommend for my child? Why?
- What are the expected benefits of each kind of treatment?
- What are the risks and possible side effects of each treatment?
- What is the treatment likely to cost? Will insurance cover it?
- How will treatment affect my child's normal activities?
- How often should my child have checkups?
- Would a retinoblastoma clinical trial (research study) be appropriate for my child?
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